Ongoing pain can really undermine a person. It takes a toll in wellbeing, it eats away at your confidence, and it can undermine you feelings of self worth and self esteem. This can be especially bad if you need to hide your pain for the benefit of the comfortable people around you. Having to do everything a well person would do, but while hurting and pretending not to hurt is a course of action that may easily leave you feeling like you’re not a real person.
I’m heartily sick of seeing people who are suffering getting told off on social media for talking about their discomfort. I’m weary of people who are ‘depressed’ by other people’s difficulties and feel the right answer is to make the person who is suffering feel guilty and ashamed for talking about it, so as to shut them up. This adds more layers of suffering for a person who is already in trouble. We need to stop sacrificing people who are in distress just to maintain the ease of people who are already having a better time of it.
I wish we had the support in place that meant people who are ill could reliably afford to rest. I wish illness did not radically increase your risks of living in poverty. I wish we did not measure people so much by their economic activity. I wish there was more scope for people to heal and recover when they need to. I imagine a society in which no one was expected to push relentlessly through pain and suffering, and where we were not so quick to assume that someone struggling is lazy, or not trying hard enough.
Living with pain will eat away at your sense of self if there is no scope for that pain to even matter. If your life does not allow you to take care of yourself, if there is no one to help you, give you breaks or take care of you, suffering is inevitable. When your self esteem is constantly undermined in this way, it is that bit harder to hold boundaries, protect yourself or ask for what you need. And so you trudge on, hurting and exhausted, because trudging on seems to be the only option.
What would it take to change that? The answer isn’t about personal changes, and it should not be the responsibility of people who are suffering to find individual solutions to systemic problems. We need a kinder society where taking care of people matters, where there is economic support for whoever needs it, and medical care free at the point of delivery. We need a work culture that won’t punish you for being ill, and won’t break you with needless stress in the first place. We need the time and energy to take care of ourselves. It would be revolutionary to start treating quality of life like it matters, and not as a perk for those who enjoy the accident of being born into the most privilege.