Tag Archives: disease

Diseased Druid

Yesterday I was too ill to make it to the desktop computer, so there was no blog. One of the plusses of being self-employed is that this very seldom happens. When I’m merely a bit ill, I can keep working. That I need to is part of the downside of being self employed – if I don’t work, there is no sick cover. I’m paid for what I do, more often than not, but if I get ill and can’t work for a long period, this is unnerving. Usually I’m not so ill that I can’t push through it.

‘Can’t’ is an interesting word though, and one we all bring into play at different times. I tend to be fairly literal about it – ‘can’t work’ tends to mean fever, inability to actually sit in an upright position, so sleep deprived that I can’t concentrate and the like. I also know from experience that if I have to, even that level of  ‘can’t’ can be pushed. I’ve done school runs on foot, feverish with tonsillitis because there wasn’t any other option that day.

‘Can’t’ is more of an option when you have a safety net. If someone else can catch the critical things that are challenging, it is easier to lie down and quit for a bit. The winter before last, when I had pneumonia, Tom did all the shopping. Long cycle rides in the rain to fetch groceries. A task that normally required us both, he took the extra load, quite literally. But then, there are some illnesses (and pneumonia is one of them) where stoically battling on can kill you.

I marvel at the array of different human responses to discomfort and disease. The people for whom a bruise or a cut is worthy of comment, through to the other extremes of people who push through chronic and even terminal illness because there are things they want to achieve. The worst thing we’ve endured is the measure of what we know we can take, so those who are relatively pain free and healthy tend, in my experience, to make a lot more fuss about minor setbacks than people for whom those small things might be less of an issue than what constitutes business as usual.

Our baseline for compassion also has a lot to do with experience. It’s easier to empathise with someone if you have some faint clue as to what their experiences may feel like. Those who have lived well and pain free, for whom a scrape and a bump is the worst of it, sometimes find it very hard to make sense of the people for whom pain is a constant. And so you can get into situations where the relatively unscathed demand a lot of attention for minor ills but do not take seriously the ongoing suffering of others.

One of the things I notice about people I know who live with pain, restricted mobility and serious ongoing health challenges, is they often learn not to make much fuss. Partly, I suspect, because the baseline for normal shifts over time and with it shifts the point at which it feels worth saying something. There is the fear of being seen as a nuisance, by those who are not suffering and who will be bored or offended by the details. There is pride, and the determination to be independent, as far as possible.

What a person says about their struggles, illness and difficulty, of any variety, is not any kind of absolute measure of what they are up against. We’re very quick to judge each other, especially if there are questions of our time and energy being required to cover for someone else’s illness. It is inconvenient. They may be making a fuss about nothing. They may also be making far too little fuss about a great deal and it’s worth remembering (having seen a few very close calls with other people) that this degree of stoicism can prove fatal.