Most of my joints will bend the wrong way(s) under any kind of pressure. It’s only in the last few years that I’ve grasped that this is a thing with considerable implications. It explains much of why I hurt, and why I get tired a lot. The tissues supporting my joints are softer than normal, so everything takes more effort, and I’m more likely to injure myself, including micro-damage. When I was first dealing with fatigue issues in my teens, I’m not sure anyone was aware of this sort of thing. No one asked about my joints.
My ankles are especially bad. I spent my childhood falling over a lot, running was scary and difficult. But, I’ve persisted, kept moving, walked, danced, swam, did what I could with this body and tried not to hurt it too much. I hold pens and chopsticks the ‘wrong’ way to alleviate hand pressure. I hold bows the wrong way, I probably type wrongly as well, but I get by.
A few weeks into learning Tai Chi it became apparent that I couldn’t get the knee and toe positions right for most stances. It’s a small knee bend. My teacher talked a lot about not bending knees the wrong way – clearly used to a lot of older students with dodgy knees. I started exploring what was happening between knees and ankles and realised I was loading the joints badly. Thus started a massive program to re-think how I stand and walk.
My ankles default to rolling outwards in response to any kind of pressure (i.e. being stood up). This probably makes me more likely to fall over, and I suspect it puts pressure on my knees and thighs. One of my hip joints is very loose as it is and often problematic. To correct my ankles I had to get more weight onto the inside of my foot. I focused on my big toes. I did it when practicing Tai Chi, and also when walking, and at first it really hurt, and gradually it’s got easier.
This in turn has got me looking at my toes. I’ve never been a serious wearer of pointy, heeled shoes so my toes aren’t much distorted by that, but they do all roll towards the middle. Getting my weight in the right place has meant training my toes to spread out a bit more. I need to build toe strength! When learning new moves I have to figure out how I’m going to get my ankles to the right place, and this can be tricky with bigger steps, but I’m getting there, and my teacher has been supportive and helpful.
I’ve learned a lot about my body in recent months. I’ve learned things that I wish I’d known when I was a child, struggling with sports lessons. I wish my teachers had known. I wish my doctors had known when I started having fatigue issues. I spent so long with body pain being treated like an over-reaction, fatigue being treated like drama, the poor co-ordination that goes with hypermobility being treated like a personal failing or lack of effort. It’s hard to ask for help when you’ve been convinced that your body is fine and your mind is the problem. I’m getting there now, and it’s changed how I feel about myself and what I do with my body.
I’d internalised so much of that sense of my body issues just meaning that I am a crap person in some way. Having a clear sense of the mechanics has been empowering, and allows me to feel better about myself. I get tired more than the average person because everything takes me more effort. I hurt more because I take more damage. It was never all in my head. And now that I’m dealing with it as a thing happening in my body, I might even be able to improve the situation for myself.