When ‘normal’ people are ill or tired, they rest. What do you do if ill and/or exhausted are your normal condition? I go round this one a lot, and while I’m not able to offer definitive answers, I think there’s mileage to be had in framing the questions and possible answers.
Rest helps us recover faster from illness. Not resting when ill not only slows recovery, but also undermines mental health.
However, being physically active helps move the blood and lymph fluids about, which can also help. Too much inaction leaves us with weakened muscles, reduced stamina, less healthy hearts. Not moving much can also make mental health issues worse. Physical activity is encouraged as an answer to depression and anxiety. Being as fit as you can be helps you stay resilient.
Except if you always hurt and you never have much energy, being active is hard. It isn’t easy to tell if a sudden loss of energy is because you have energy issues, or because you are coming down with some simple ailment like the flu. If you are used to pushing to get things done it can be hard to work out when not pushing is the better answer.
Depression causes loss of energy. Depression is a common consequence of living with long term pain and illness. It isn’t easy to separate the heavy lethargy of depression from the physical experiences you may be having.
It is easy to get into unhelpful cycles. If you push all the time to keep going, you learn to ignore what your body tells you. You become alienated from your body and fight against it continually. You don’t notice when things go wrong that need some response other than pushing harder. This puts you at risk. Perhaps in the end you run out of the will to keep pushing yourself onwards all the time. That can be very hard to recover from.
If you rest too much, you lose, or do not develop physical strength, stamina and co-ordination. Depression may increase. Increasing your feelings of lethargy. You feel powerless, you may feel increasingly intimidated by the idea of trying to do anything. You may just keep spiralling down in this way until you aren’t really living your life at all.
There’s no simple solution to this that I can see. Listening to your body is good and so is trusting your body, but depression and exhaustion don’t make you into a good listener. Often the opposite. Other people will have advice for you, maybe some of them will think they know what you need better than you know. Sometimes they may be right, but not always. Other people will have magic cures and absolute certainties for things that will change everything – but your body is unique and what worked for one person is not guaranteed to work for you.
There are no simple answers. Keep questioning. Keep trying things. Don’t give up on yourself. You may never be able to get so that your body works in the way a normal body is assumed to work, but that’s not the only good outcome available. You can find combinations that serve you best, and that improve your quality of life and you can do it on your own terms.