Disability is a loss of power. At the most obvious level, it is the loss of scope to do what is considered normal in the way the majority are able to do it. That in turn often creates a loss of opportunity. For many people, disability means poverty, it means a massive disadvantage in terms of economic power. It can also mean a loss of social power, as a result of being excluded or ignored. It can mean people feeling entitled to act in positions of power over you – speaking for you, telling you what’s best for you, what you need, what you are allowed and how much the healthier consensus folk are willing to budge to accommodate you.
What makes this extra difficult is that it can’t all be fixed. There are some disabilities that will keep you powerless and outside of things no matter how good the infrastructure is. If your problems are extreme and continuous, the loss of power can be absolute. There are times when we may need people to speak for us and to make decisions for us – for myself, if I’m deep in a panic attack, I often need other people to do things for me in the short term. To speak and act for me until I can speak and act for myself again. And then to give me that power back. To be unable for a while does not mean being unable forever, and if we don’t recognise how shifting these experiences can be, we take more power from people.
If we’re interested in inclusivity, then the power issues need considering. How do we give more power to a person who has lost power in this way? Listening is important. Being willing to hear what changes would help rather than being unwilling to inconvenience ourselves. The power to not be inconvenienced by change is a power held by people for whom everything is working just fine already. The experience of being exiled because nothing will change is a loss of power.
Speed is often a problem. Simply allowing people more time to respond, to deal with things and so forth can make a lot of odds. Many disabilities impact on people’s energy levels, their personal power and scope to get things done. Making a person move at a pace that they can’t move at further takes power from them.
We need to be alert to economic powerlessness, or the things we are doing become hobbies for the comfortable, and we can have no real communities. Poverty is not always visible or self announcing. Those who are not in poverty can have real trouble imagining what poverty means. Again, the people with the power are often in a position to ignore the problems of the people with no power, and to put their convenience ahead of inclusion.
If you have the power to exclude people by not trying to accommodate them, you have the power in a situation. Too often, people struggling for the means to participate are treated as though they have all the power, as though rights afforded to them mean a loss of power for everyone else. Accommodating someone is not a loss of power. Giving someone else the means to participate is not a loss of power to the majority, and it should not function to exclude anyone else. Too often, those who have power mistake being asked to empower others for being disempowered, and that’s not what’s going on.
It is so important to look properly at who has power and who does not. It is so important to know what kind of power we have and how that power impacts on others.